Cardiff campaigners will be a part of specialists to assist educate docs in Wales on the life-changing affect of medical hashish.
Dad and mom and campaigners, Rachel Rankmore and Craig Williams, will be a part of specialists in Cardiff on Wednesday 5 October to assist enhance understanding of medical hashish amongst docs.
Representatives from the Medical Cannabis Clinicians Society (MCCS), are to host the tutorial occasion, which goals to lift consciousness of hashish medicines among the many medical career.
They are going to be joined by Rachel and Craig, mother and father to 20-year-old Bailey Williams, who’s prescribed medical hashish for treatment-resistant epilepsy.
Bailey, who has a uncommon type of epilepsy referred to as Lennox-gastaut syndrome, suffered tons of of seizures a day earlier than taking hashish oil.
Based on mum Rachel, he’s now “dwelling his greatest life” with ambitions to be unbiased sooner or later.
However the household are nonetheless compelled to fundraise to pay for his prescription privately and have even confronted the prospect of shedding entry to the product all collectively, following a change in importation rules earlier this yr.
Rachel and Craig will share the story of how hashish has helped Bailey, with docs, sufferers and healthcare professionals from throughout Wales, who’re invited to attend the occasion, Medical Hashish: All the pieces You Have to Know – a sensible introduction to medical hashish and CBD.
Rachel informed Hashish Well being she hopes to assist clinicians perceive the distinction they might make to a affected person with Bailey’s wants.
“During the last 18 years of his life, Bailey has battled epilepsy, leaving him out and in of hospital continuously. He tried over 20 prescribed drugs, some unlicensed and untested, together with vagus nerve stimulation (VNS) and the ketogenic weight-reduction plan, all of which had horrific unintended effects,” she commented.
“This struggling might have been alleviated if we had had help and understanding from clinicians who had a willingness to battle for Bailey’s high quality of life, particularly as there was nothing left to attempt.”
Rachel continued: “There’s a larger image to be seen when taking care of a baby with advanced well being and bodily wants. The entire household unit is affected and left with the fall-out of drug failure, psychological well being and fundraising for monetary help, which is pressure sufficient with out preventing for a drugs that we have now clearly proven time and time once more works for Bailey.”
Rachel and Craig might be joined by Dr Elie Okirie, a marketing consultant in neurological and specialist rehabilitation and one of many first prescribers of the therapy within the UK, and Katya Kowalski, head of operations at Volteface.
Professor Mike Barnes, chair of the MCCS will host the occasion, which is open to clinicians, medical college students, scientists, researchers, professionals and sufferers interested by medical hashish and the present state of prescribing, proof and availability within the UK.
The MCCS is made up of over 300 clinicians, together with specialist consultants in a variety of specialisms, GPs, nurses and allied well being professionals.
Rachel added: “I might be Bailey’s voice in sharing his brave journey and his battle for wellness.
“In doing so I hope clinicians and medical college students will realise that they’ll make a distinction to somebody like Bailey and perceive that prescribing hashish shouldn’t be the final type of therapy on provide.
“We have to give docs sufficient schooling, help and instruments to prescribe.”
The occasion takes place at 6.30pm on the Radisson Blu Cardiff, with networking and a panel Q&A for attendees following the audio system.
Signal up for the event here.